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Little T's platelets and MRA

Unfortunately his platelets have dropped to 67. Below 50 is when we need to worry about him pulling up and cruising, but it's a downward trend. Also the clinic is closed on Friday, so instead of going in then as we would normally with a number like that, we have to wait until Tuesday.

The doctors have increased his steroids to 2.7mg/kg, so I expect him to get angrier. Right he flies into 'roid rages 2-3 a day. He already has a "moon face" from the steroids.

Poor guy had 3 sticks today to get an IV in him, because he had to go under general anesthesia for an MRA(an MRI with contrasting dye) to look at the tumor on his left arm. The MRA showed that his tumor is smaller than his last MRA in April. Not too surprising, and that it's not growing into anything important.

He came through much better than we expected. For the first time in numerous times under anesthesia, he woke up before he got to the recovery room. By the time I got there he appeared alert and pointed at me to try and get me to pick him up. Within five minutes he was drinking and then proceeded to drink 6oz over the course of an hour. That's a new drinking record for him. Poor guy he'd been off food since midnight the night before. And usually we give him a 600ml feed overnight through his g-tube.


( 3 notes — Leave a note )
Jan. 14th, 2006 03:33 am (UTC)
frumiousb said...

poor guy! sending good thoughts to all of you.

11/22/2005 11:41:11 PM
Mar. 13th, 2007 05:27 am (UTC)
my son has a g-tube and i'm looking for what do do when he wakes up in the middle of the night because other babys could get a bottle to calm them in the middle of the night but i can't really give him anything.... any thoughts or what do you do...
-sean- and -landon-
aim: itsoverimeanit
Mar. 13th, 2007 09:38 pm (UTC)
Hi and welcome!
We give our son a pacifier which helps. When our son cries it's usually because he's cold or wet or he had a bad dream. So we pick up and change him if he needs it then cuddle him for a bit and then put him back in his crib. Hope this helps!
( 3 notes — Leave a note )