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Update: seizures

After writing all that I did get up the guts to call my SIL.  She was both practical and reassuring.  She said that seizures are more easily controlled than movement disorders with medication.  But he would have to take medication if he had seizures.  She also said that many kids grow out of it.  I dunno.  Just hearing her talk about it as something she deals with all the time... as a neurologist of course helped.  I am now not sure what to hope for except that he stops falling but that has been happening for over a year now.  We will also have to do more tests after this one as this is the first of several.  I am feeling more calm.  I'm back in "okay this is bad news but he's still the same delightful boy he ever was."   I'm sure I'll go back and forth.  This is part of what this LJ is for me.  And I definitely am not going to tell my parents until we get a definitive answer.  My dad's reaction to the cerebral palsy was bad enough and I was at that point perfectly okay with the diagnosis.  And now apparently he may have grown out of it so I just got aggro from my dad for nothing.


( 3 notes — Leave a note )
Aug. 10th, 2007 02:22 am (UTC)
Aug. 10th, 2007 02:25 am (UTC)
Sending all good thoughts your way.
Aug. 19th, 2007 03:48 pm (UTC)
Thanks. Haven't seen an update from you in a while. I hope things are going as well as they can be expected. Hugs.
( 3 notes — Leave a note )